A long walk (part 3)

This is a continuation of A long walk  parts 1 and 2

When I woke up the next morning, I couldn’t stand the light…in any form.

Okay now I was getting really scared.

I asked Einstein to take me to the immediate care center.  His license was suspended, and he refused to risk it, so I drove myself.  Before I left though, I called my parents and told them what had been happening to me, just so someone else knew.

By the time I arrived at the office, my head was spinning again, my vision was blurry, and the nausea was overwhelming, so I just laid in the car for a few minutes.  Even with the air conditioning on, the car was too hot to stay for long, so I forced myself to walk in the front door.  I made it to the counter to register, uttered my name and collapsed on the floor.  When I came to, I was in the emergency room at Decatur Memorial Hospital.

Thankfully I carry a sheet of paper in my wallet (right next to my driver’s license) with all of my medications, surgeries, doctor’s names, and emergency contacts on it.  The hospital found the list, and had already called my parents. They were on their way down.  The doctor was performing a spinal tap on me in the emergency room when my parents arrived.  Several MRI’s were performed, the Lumbar puncture, and it was concluded that I had a CSF leak.

I was in the hospital in Decatur for a week, receiving a continuous supply of caffeine and sol-medrol via iv.  I didn’t feel like it was helping at all, in fact pumping that amount of stimulants in my body while telling me I had to lay completely flat was making me homicidal.  The hospital listed me as a fall risk (no surprise there) and set alarms on my bed to prevent me from getting up to use the bathroom on my own.  After wetting the bed a few times while waiting for assistance, I suggested that they put a foley catheter in instead.  They didn’t.  Instead they put a ‘GPS tracker’ on me.

april 13 045I was livid! So much so that I really began to show my ass.  I informed them that I was leaving their backwoods, no brain hospital, and going home to where doctors actually had some brains.  (I didn’t know how I was actually going to do it, but I was leaving)

In fact, just to show them they couldn’t “hold me”april 13 046

I slipped the tracker off my wrist without breaking the band and threw it at the nurse when she finally came in to respond to another alarm I had set off.

Yes I CAN be quite the asshole, when I feel trapped.  and NO, I am not proud of that, but it is true.

The hospital began trying to arrange an ambulance transport back to Chicago…. like insurance was going to cover that….  No no, just sign my discharge papers and I will be on my way.

I called my neurologist in Chicago, and he asked, “Why don’t they just do a blood patch?”  I responded, “because they are idiots”.  (not that I knew what a blood patch was either or where I could “pick one up”)

I would soon find out……

19 thoughts on “A long walk (part 3)

  1. I’m sat here in utter disbelief!! A GPS tracker??? Are you kidding me???? Bloody hell. It amazes me sometimes how very different our healthcare systems are.

    You are one kickass women and I wouldn’t expect anything less than full on ass-kicking from you!!!

    We so need a ‘coffee’ when time zones and MS allow!!!

    Liked by 1 person

  2. Wha? Hospitals. I’ve been extremely lucky, I haven’t had that bad of a time… but the handful that has been bad… don’t get me started. What a hell of a time Grace. I will continue to read. My heart just breaks for you. You had to do that all alone. Is it any easier now that your kids are grown? I hope you are not attempting to drive solo anymore. These are very serious medical issues you have been through! I’m just glad you are on the other side of this incident. (I’m sure there are many more, for that, I hate this for you!) ~Kim

    Liked by 1 person

    1. I’m not sure if it’s easier or not with my kids being grown. They really helped alot when they were growing up (they had to). Now that everyone works full time ( the kids and their significant others, sometimes It is harder to get help when I need it, but by the same token I have a bigger pool to ask from if that makes any sense.

      Liked by 1 person

      1. I get that. You want them to have their own lives, yet, there are times you need assistance. It is a toss-up, I can see that. Still so glad you are here Grace. It has been fun getting to know you. and I am silently observing and keeping my fingers crossed as you begin to get to know the person you are… I hope you see what the rest of us see, what an outstanding woman you are.~Kim

        Liked by 1 person

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