Isn’t it Ironic?….smh

Have you ever heard of the Link or EBT card or food stamps? Usually people receiving government benefits such as these have some kind of disadvantage that prevents them from earning enough money to live on. Examples might include a mental or physical disability. Lack of childcare etc. So why are the benefits so hard to use?

I’m not sure if I ever stated that I was on Social Security Disability before. (very limited income) This year with the increase in my medical expenses, I have qualified to not only receive financial assistance to help with those bills, but also have qualified for the link card.

Last weekend, I tried to complete an online order at Sam’s club as I have frequently done in the past. Pre-covid, the system was called Click and pull. The process was usually fairly easy and straightforward. You selected the items you wanted by placing them in your cart, and when finished you would select the date and time you would be picking up your items. When you arrived at the store, you would go to a special “click and pull” desk with your list, or confirmation code and your payment. Someone would then bring all of the items to the front of the store for you, and even help load your car. Win win right?

Why not THIS time?

I went online, selected my items and was directed to a new area called, “curbside pickup”. Okay. no biggie right? Well apparently it is a big deal. You must pay for your order before the club will pull it. OK, I get that, but WHY DON’T they take link online?!?!?!? If I need to use the link card I have to shop for myself, which kind of defeats the advantage of online shopping doesn’t it?

I even called the store to explain my problem and asked if I could pay for my groceries with my credit card, but switch the payment types at customer service when I picked up the food…… NOPE! As a side note, a good portion of the items I tried to purchase where eligible for FREE SHIPPING, but you also can not use the link card for shipped items?!?!?

Everywhere in the US is still encouraging social distancing. People that are immuno-compromised are supposed to avoid others even more. So WHY do I have to go in the store?

Am I the only one who sees the irony of this?

I feel like the system is designed “to keep a man down” more than to help them.

Enter the “How Grace-ful are you?” Contest

Grace-ful- knowledgeable about Grace Fullnot or msgracefulnot.com

On Saturday evening, I mentioned that there would be a contest today. In case you did not see the previous post, let me explain the terms here.

  1. Please do not post any answers to the questions until Sunday, September 6th between 9 and 3pm central time so that more people have a chance to enter.
  2. When answering a question, please include information as to where you found the answer (post name, guess, etc) *If you have the time, this part is not necessary to win.

Here are the questions:

  1. How old am I?
  2. Why did I select msgracefulnot as the name of my blog?
  3. How long have I had MS?
  4. What is the “address” of my advice to those diagnosed video?
  5. What is the name of the disease modifying drug I am on for Mulitple Sclerosis?
  6. How do I refer to my daughters in my blog? Can you tell me why?
  7. Which of those sweet little demons did I leave at the store?
  8. Name at least 3 places I have traveled to via plane in the last 2 years.
  9. How many times have I been in a boot for a broken foot? (this is a trick question, even I don’t know the answer)
  10. What is the most annoying symptom of MS that I deal with? Please list at least 2 treatments I have tried.
  11. Do you remember my German Shepherds name?
  12. One of my happiest memories from 2018?
  13. What do I call my significant other?
  14. What are my grandsons names?
  15. Do you remember how we met or how you found msgracefulnot.com?
  16. What is your favorite post that I have written?
  17. What 2 three letter words, or acronyms, internet slang do I use the most? Can you tell me what they mean?
  18. Bonus points if you share this post on social media, and share the location you posted to!!!!!!
  19. This is a “freebie”… If you are a blogger, can you create a post with links to past posts you that you have written that you feel would give a new reader a good sense of what your blog is about? If you do I will share the hell out of it….FREE ADVERTISING HERE!!!!
  20. If you are the winner, which rose would you like? With or without stem?

The winner will receive their choice one of the above pictured roses that I printed with my 3d printer mailed directly to their home or office. (more about 3d printing to come)

Thank you in advance for stopping by!

On second thought….

About a week ago, I wrote a post called “saying goodbye“. My credit card was billed $94.00 for a word press subscription that I wasn’t using, so I figured it was a good time to cancel. After posting said post, several of the friends I have made on WP advised me that WP had free version and I would only need to pay $18.00 a year to keep my domain name msgracefulnot.com. Hmmm ok that I could do, so I took down the Saying goodbye post, cancelled the paid subscription, and here I am.

Thank you again to those of you that reached out to me!!!!!

Why I stopped using Word press

For the greater part of last year, I made the conscious choice to avoid social media as much as possible. My personal plate was full and I couldn’t deal with all the negativity, fear, and hate being passed around between people. I saw sides of people that I could not imagine they were capable of, so after writing, Say what you mean, and mean what you say, I pretty much “disappeared.”

When I created my blog, my original intention was to provide PROOF that with the right amount of determination, creativity, and humor you can survive almost anything.  I wanted to help anyone that was feeling alone or overwhelmed with their lives, to see that they were not alone.  I believe that on many occasions I did that.

  1. I have written about  being diagnosed with Multiple Sclerosis. 
  2. I’ve written about choosing a disease modifying therapy.
  3. I’ve written about how insurance companies like to “play doctor”.
  4. I’ve written about my children and not winning the mother of the year award.
  5. I’ve talked about air travel with MS.
  6. I’ve talked about Train travel in a wheelchair.  and the importance of knowing your equipment and your limits.
  7. I’ve talked about being full of shit.
  8. I’ve shared some of the treatments for bladder incontinence and urge incontinence due to MS.
  9. I’ve shared some of my most painful moments.  (Mentally and physically)
  10. I’ve shared some of my happiest moments.

I mentioned earlier that I’ve had a full plate this year, but I’ve not been at all specific. There are multiple reasons for this.

In some instances, the stories I want to share, are not entirely mine to tell. For example, both of my parents are going through life changing medical issues. I can tell you how it’s been affecting me, but I’m not sure how much is TOO much to share. I’m still working on this.

Another reason for the vagueness is because the “jury is still out” about many of my health issues. While I can share what I have been experiencing, and why I’ve been doing what I have been doing, I still don’t know if my decisions were the right ones to make, so I don’t want to lead anyone astray if they are dealing with anything similar. I will work on this as well.

In the meantime, I would like to reintroduce myself, and invite you back into my world. If you are joining me for the first time, my About Me page, is a good place to start. (I wrote it a year ago, but I believe most things still apply.)

When I thought I was leaving wordpress, I was trying to think of a way to “go out with a bang.” I began creating a “contest” to attempt to draw everyone in, one more time. It has occurred to me, that I can use the same contest to “Come in with a bang”, or “get back in the saddle if you will.” Giving away prizes, opens the door to discussing some of the positive things that I have been doing over the last year as well.

On Wednesday, September 2nd at 9 am Central Time, I will post a list of questions about myself, or things I have written about in this blog. I do believe that most of the questions can be answered by reading the posts that I have linked above. (if not THESE posts specifically, the answers will still be available within my website) The prizes will go to the first two people that post the most correct answers to my questions in the post “How graceful are you?” in the comments section of that post no earlier than Monday September 7th @ 9 am central time and no later than 3 pm Central time of the same day.

I hope you will all participate. See you soon!

Check out my New Implants!!!

OMG Grace! Is that ALL you do….. talk about your foot?

Well that’s not ALL that I talk about, but since there is not much that I can do without it  affecting me, yes I talk about my foot A LOT.  And my wheelchair, but I have that because of my foot, so I guess it’s about the same huh?

I promise to write about something other than my foot soon, but first I would like to share some updates for anyone that is interested.

0402201617First of all, I have now been casted in every different color material available.  Who would have thought that something like that would go on my list of “achievements”?!?!?0402201529

Secondly,  while there is still no end in sight about the amount of time I will be non- weight bearing and in a cast, the incisions appear to be healing well and I am no longer in much pain.

0422201927Third, while I swear I have not put any weight on my right foot, I can’t say that I haven’t been a bit self destructive during my recovery. Not only did I have a bit of an obsession with tearing apart one of my casts, but I also attempted to go down two stairs by myself and ended up being launched from the wheelchair.  Thankfully, the doctor said the x-rays showed the only damage I did was to my pride.  Yay for me!!!!

Thank you for taking the time to stop by today.  If you have a few more minutes, would you mind sharing your longest to recover from injury?  Did you follow doctor’s orders? I look forward to hearing from you!

 

 

 

 

 

What the hell was I thinking?

DO NOT SCHEDULE 2 MRI’S ON THE SAME DAY!!!!!

I know better!  I’ve even written about it in…. Not the Tube.   Of course, I didn’t listen to myself. SMH  Then again, when I do listen to myself, I often make bad decisions.  When your done reading and or watching please share your opinion about whether YOU think I should listen to myself.  I’m pretty sure the answer is not a simple Yes or no.

Ok, so my dumb ass not only scheduled two MRI’s for the same day, but I also attempted to do it drug free.  I will NOT be doing that again!  In fact, I’m pretty sure the hospital put a great big caution sign in my chart saying that I have to be sedated. SMH again

Thing 2 picked me up on Friday and drove me to the hospital for the procedures.  I found that she REALLY enjoys pushing me in the wheelchair.  ( into the curb, into the wall etc)  I went through my 200 question checklist about whether I had metal implants, tattoos, etc in or on my body and was surprisingly ok’d to get in the tube.  Then the nurse asked if I was claustrophobic.  Um yeah….”OH SHIT, how had I forgotten to take the medication?!!??!?”  She told me they could reschedule the MRI, or I could take the medication and wait 45 minutes for the medication to take effect.

I TOLD her I would be fine as long as the tech talked to me between pictures.  SHIT SHIT SHIT!  As she wheeled me to the dressing room to change into the scrubs they provide, I could feel my anxiety increasing, and discreetly slipped a xanax into my mouth. Work work work!

The MRI tech was back within moments to take me to the MRI room.  I’m sure the terror I was feeling (yes terror) showed on my face when he also asked me if I was claustrophobic, but I also told him I would be “ok” as long as he talked to me between pictures.  (I told him all 5x that he asked me)

I wasn’t ok.  I freaked out!  I pushed the panic button before the first set of pictures where complete.  I passed out before he pulled me out of the machine, and vomited on the floor as soon as I came to. SMH again.

Fortunately, the MRI department was very forgiving and not busy that day.  They cleaned my mess, and allowed me to clean myself up.  They told me if I wanted to take medication I still could, but I would have to wait 45 minutes for it to take effect before we could try again.  Perfect! I thought.  I would probably only need another 25 minutes to be “calmer” since I had already taken one, but the least I could do was wait 45 minutes after the ordeal I caused.  Unfortunately, they needed to see me take the medication.  Ah fuck!

Um OK.  I do know that I CAN take two pills, as I have previously been prescribed a higher dose, but I also know that it pretty much puts me ‘out’ for the evening.  So OF COURSE, I made Bad decision number 3, (if you’re counting) and took the pill.  While waiting to retry the MRI, I noticed an empty wheelchair in the hallway, and asked Thing 2 if she would like to have a race or 2.

We did.  Here is the video to the only race I may have won (my foot dropped and I think I may have pushed off).  Wheelchair race  After several races, (I encouraged other patients and visitors to get involved as well)  I did survive the two MRI’s to test for PML and am waiting to hear the results.

So what’s your opinion?  Should I listen to myself or not? 😉