A Post a day APAD Day 12 Can you help me?

“Can you help me”?

Don’t Answer that! It’s a trick question! At least for me it is. When someone, hell anyone, asks “Can you help me?” In all of two seconds I respond, “sure” or “probably”. What they don’t ask and I don’t ask myself is, “Do I want to?”. I really need to learn to start saying, “No”.

I absolutely HATE asking for help. It’s probably more that I hate NEEDING help, but either way I hate it. So when someone asks me for help, I automatically feel that it must have taken them alot to ask me and I pretty much automatically respond “Yes”.

Just say no

Grace just say no.

Grace just say no.

Do you think it will help?

Check out my New Implants!!!

OMG Grace! Is that ALL you do….. talk about your foot?

Well that’s not ALL that I talk about, but since there is not much that I can do without it  affecting me, yes I talk about my foot A LOT.  And my wheelchair, but I have that because of my foot, so I guess it’s about the same huh?

I promise to write about something other than my foot soon, but first I would like to share some updates for anyone that is interested.

0402201617First of all, I have now been casted in every different color material available.  Who would have thought that something like that would go on my list of “achievements”?!?!?0402201529

Secondly,  while there is still no end in sight about the amount of time I will be non- weight bearing and in a cast, the incisions appear to be healing well and I am no longer in much pain.

0422201927Third, while I swear I have not put any weight on my right foot, I can’t say that I haven’t been a bit self destructive during my recovery. Not only did I have a bit of an obsession with tearing apart one of my casts, but I also attempted to go down two stairs by myself and ended up being launched from the wheelchair.  Thankfully, the doctor said the x-rays showed the only damage I did was to my pride.  Yay for me!!!!

Thank you for taking the time to stop by today.  If you have a few more minutes, would you mind sharing your longest to recover from injury?  Did you follow doctor’s orders? I look forward to hearing from you!

 

 

 

 

 

What the hell was I thinking?

DO NOT SCHEDULE 2 MRI’S ON THE SAME DAY!!!!!

I know better!  I’ve even written about it in…. Not the Tube.   Of course, I didn’t listen to myself. SMH  Then again, when I do listen to myself, I often make bad decisions.  When your done reading and or watching please share your opinion about whether YOU think I should listen to myself.  I’m pretty sure the answer is not a simple Yes or no.

Ok, so my dumb ass not only scheduled two MRI’s for the same day, but I also attempted to do it drug free.  I will NOT be doing that again!  In fact, I’m pretty sure the hospital put a great big caution sign in my chart saying that I have to be sedated. SMH again

Thing 2 picked me up on Friday and drove me to the hospital for the procedures.  I found that she REALLY enjoys pushing me in the wheelchair.  ( into the curb, into the wall etc)  I went through my 200 question checklist about whether I had metal implants, tattoos, etc in or on my body and was surprisingly ok’d to get in the tube.  Then the nurse asked if I was claustrophobic.  Um yeah….”OH SHIT, how had I forgotten to take the medication?!!??!?”  She told me they could reschedule the MRI, or I could take the medication and wait 45 minutes for the medication to take effect.

I TOLD her I would be fine as long as the tech talked to me between pictures.  SHIT SHIT SHIT!  As she wheeled me to the dressing room to change into the scrubs they provide, I could feel my anxiety increasing, and discreetly slipped a xanax into my mouth. Work work work!

The MRI tech was back within moments to take me to the MRI room.  I’m sure the terror I was feeling (yes terror) showed on my face when he also asked me if I was claustrophobic, but I also told him I would be “ok” as long as he talked to me between pictures.  (I told him all 5x that he asked me)

I wasn’t ok.  I freaked out!  I pushed the panic button before the first set of pictures where complete.  I passed out before he pulled me out of the machine, and vomited on the floor as soon as I came to. SMH again.

Fortunately, the MRI department was very forgiving and not busy that day.  They cleaned my mess, and allowed me to clean myself up.  They told me if I wanted to take medication I still could, but I would have to wait 45 minutes for it to take effect before we could try again.  Perfect! I thought.  I would probably only need another 25 minutes to be “calmer” since I had already taken one, but the least I could do was wait 45 minutes after the ordeal I caused.  Unfortunately, they needed to see me take the medication.  Ah fuck!

Um OK.  I do know that I CAN take two pills, as I have previously been prescribed a higher dose, but I also know that it pretty much puts me ‘out’ for the evening.  So OF COURSE, I made Bad decision number 3, (if you’re counting) and took the pill.  While waiting to retry the MRI, I noticed an empty wheelchair in the hallway, and asked Thing 2 if she would like to have a race or 2.

We did.  Here is the video to the only race I may have won (my foot dropped and I think I may have pushed off).  Wheelchair race  After several races, (I encouraged other patients and visitors to get involved as well)  I did survive the two MRI’s to test for PML and am waiting to hear the results.

So what’s your opinion?  Should I listen to myself or not? 😉

Leaving your phone in a Lyft driver’s car

I walked into the hotel room at 12:30 am to drop off my bags and to park the wheelchair.

How do you reach your Lyft driver if you forgot something in their car?

When I walked into the room, “T” was awake, and still fuming about the height of the bed.  I unburied my tablet and asked T to use her phone.  Actually, I don’t think I asked, I think I just said I was taking it.  She  continued to complain about the hotel saying I needed to talk to the manager.  I put my hand up and said,  “we need to be awake at 4:30″, I can’t do this now.  I have to find my phone, or I won’t be going anywhere tomorrow”.

I headed back outside with phone and tablet in hand.  I sent several text messages to my phone hoping the driver might see them on a pop up.  I called Thing One to tell her that I had lost the phone and maybe I needed her to put a hold on it.  (My family each pays her $50.00 a month and we share unlimited everything on her account) I asked her to find a phone number for Lyft to report the loss.

She responded with the following screenshots:

This is all good in theory,   If you know your passwords.  I don’t!  My niece set up the Lyft app on my phone during my Boston trip over a year ago.  Crap ! Crap! Crap!

I filled out the Contact Lyft form using the hotel’s phone number and my email address for which I also don’t know the password.

ARGH!!!!!!!!!!!!!!!!!!!

I suspended myself from most of my accounts trying to guess the passwords.  Those that didn’t suspend me, sent a verification email to my LOST cell phone. SMH!!!!!

Just as I was going to surrender… I remembered that my neighbor works nights…maybe I could call her?   IF only I actually knew her phone number instead of only having it stored in my phone?!?!?!?

Ah but wait a minute…we are friends on Facebook..and that is the one password I remember.  I sent her a message on Facebook messenger asking for her phone number and then called her from “T’s” phone.  It’s probably a sad thing that she wasn’t surprised in the least that I needed “bailing out”.  I asked her to go to my house with her key, and I would tell her where to find my list of passwords.

When I logged into my email account there was a message from Lyft that the driver had found my phone.  Somehow I was able to contact him and beg him to bring my phone back to me.  Lyft charges a $15.00 returned item fee.  I paid that and tipped him $20.00.

At 3:15 a.m. I finally crawled into bed.  Exhausted

At 4:45a.m, there was a knock on the door.  It was the front desk guy Brent.  He had spent most of the night/morning outside smoking with me while I tried to get my phone back.  He promised that if he didn’t see me surface from the room by 4:45 he would “bang” on the door.  He had also set up coffee and set out some of the cold breakfast items even though they don’t start breakfast until 6.  Yes I wrote an outstanding review for him and the hotel.

Grace: “T” We need to get going

“T” (from the bathroom), I’m working on it.  I’m gonna need you to help carry some of my bags.

Grace:  Growl….BAGS?!?! As in multiple?!??!?! How am I supposed to carry anything while I’m in a wheelchair?!?!

LOTS of cuss words

probably even a few more

I don’t even remember her response.  I loaded all 3 of her bags and my one bag onto the wheelchair and headed to the lobby to arrange the LYFT.

I’m going to insert a copy of the review that I left for Rosebud Taxi Service which explains in more detail how we ALMOST missed our train.

I am from the Chicagoland area, where Lyft’s are frequently used and also usually readily available. I made the poor assumption that they would also be readily available in Holland, MI. While I was able to use their services from the Amtrak Station in Holland to my hotel where I was staying, I was unable to locate a driver to get to the station at 5:30 in the morning. My companion and I were both traveling in wheelchairs, so I began requesting a ride using the lyft app at 5 am even though we did not need to be at the train station until 6:30. From 5 to 5:45am I could not find anything. At 5:45, our hotel receptionist had found the number for Rosebud Taxi Service. I called and explained our situation to a very nice gentleman, who not only apologized profusely that they wouldn’t be able to help with both chairs on so short of notice, but also gave me a phone number for a competitor who might be able to help. Who does that?!?! Wow! After speaking with his competition, I don’t think they are any competition at all, their response to my dilemma was, “sorry nope nothing we can do.” I went back to trying to obtain a ride from lyft, only to have the one driver cancel the ride because in his words, “I’m 20 mins out for a 4 minute ride, not worth my time.” I did explain that we would tip very well and would probably have to be transported separately. He said, “ no I’m cancelling.”
I think I literally cried to my companion to please call rosebud back while I continued to try to use the Lyft app with no luck. After explaining our tale of woe again, the owner of the company stopped what she was doing in her personal life and came to pick us up herself with a vehicle large enough to hold both of our wheelchairs. I have to ask again, “Who does that?” I am so grateful that there are people in the world who will still go the extra mile to help “rescue” someone in trouble. I truly feel that she “saved” us. It is also important to note that she didn’t charge us any extra for our additional “luggage or needs”. I wholeheartedly give Rosebud Taxi Service 5 stars and would recommend them to anyone!

I didn’t feel it necessary to add that the owner and T could/did not help me load the wheelchairs or luggage into the SUV.  BUT that’s when the BREAK happened. Everything happened in such a rush, I honestly don’t remember the exact point it happened.  Maybe I dropped one chair on top of the other?  Maybe I closed the seat on my finger?  In fact I am sure I did both of those things.

In the short 10 minute ride to the train station, my finger turned black.  Oh shit…. The ONE thing Einstein said before I left, “DON’T BREAK ANYTHING!!!”.  There was no doubt that it was broken :(.  Didn’t matter though, we had a train to catch.

I didn’t even try to use the wheelchair other than for baggage on the way home.  The fact that “T” was able to though without the use of her legs also supports that it is doable.

In closing, other suggestions I have for traveling alone in a wheelchair are:

  • pack as light as possible
  • print your tickets etc Do NOT rely on your phone
  • TRY to get some sleep.  (I’m pretty sure the 1 hour I got is what lead me to getting sick when I got home)
  • Plan for back up options should your original plans fall through.  (multiple transportation and hotel options.)
  • Know your limitations
  • Call your hotel or transportation method to check heights, dimensions etc.  It would not be unheard of to ask for pictures of your accommodations before committing.

As a side note, while the ADA suggests a bed height of 20-23 inches in handicap accessible rooms, although, it is NOT a requirement.

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A little help please

In my last post, I talked about my difficulty with getting to the bar car on Amtrak while in a wheelchair.  At this point in the trip I was pretty exhausted, and I probably drifted off to sleep.  I say probably because one minute I was alone, and the next there was a hand on my shoulder and a voice asking, ” I am going to the bar car, can I get you anything?”  The voice was coming from a fellow passenger.  Hmmm surprising. Nice, but surprising.  I said, “No, but thank you for asking.”

I was lost in thought about the seemingly selfless gesture when he returned and asked if I minded if he sat and talked.  I responded, “No, not at all.  Thank you again for your offer to get something for me.”  He seemed nice enough.  We chatted for maybe 15 mins about where we were from and where we were going.  It turns out that we were both going to Holland.  My phone rang, and I excused myself from the conversation saying that I needed to take the call.   We both said, “goodbye, enjoy your trip.”

The phone call was from my father.  “Are you still alive?”, he asked.  I told him that I had learned a lot so far, but I was exhausted and would send a text when I made it to the hotel.

Random stranger guy came back again, and AGAIN,each time sitting closer and closer to my seat offering to do more and more for me.  “My brother is picking me up from the train station, we can throw your wheelchair in the back of the truck and take you to your hotel”.  “Are you sure I can’t bring you something from the bar car?”  Then the touching began.  I didn’t say anything about the first brush across my knee.  I assumed accident.  Then he placed his hand there and didn’t move it, until I did.

EXCUSE ME?!?!  “I think we are done talking! I have told you that I have a boyfriend and don’t feel that I have encouraged this in any way, you should go back to your seat now.”  He gave me an expression that made me uncomfortable, but stood to walk away.  Before leaving he said, “well at least let me help you off the train in Holland.”  I growled, “No, thank you, I’ve got this!”

I have never been more grateful for the ability to use my legs.  Have you ever found yourself in a position that you wanted to leave, but physically could not get out of?  How would you protect yourself if you were confined to a wheelchair?  What had I gotten myself into?  What was the train station in Holland going to be like?  Indoor? outdoor?   Would there be ample lighting?  What if the Lyft driver wasn’t there when I got there?  Do you remember my post about, SOS Messaging?  I mistakenly thought that it was available on all phones.  I’ve gotten a new phone since I dropped mine in the toilet in Italy, and LG phones do not have this feature.  😦

I called Thing One and told her about my dilemma.  We agreed that she would stay on the phone with me from the time I got off the train until I was safely in the LYFT car.  I debated with myself about whether or not to involve the conductor, until random guy walked by AGAIN.  “See you in Holland”.

No more debate, I stood up and walked to the Bar Car to find the conductor.  ” I don’t know if he thinks its funny or what, but one of the other passengers has had a lot to drink and is starting to give me the creeps.  We are both getting off in Holland.  Can you please tell me when we are like 15 mins away so I can call my ride?  Also I would still like to use the lift to get off to buy myself some more time.”  Before heading back to my seat, I grabbed 3 cups of coffee.

For the last hour of the train ride either the conductor or the junior conductor walked through the car I was in every 10 or 15 mins.  As promised, 15 minutes before we were scheduled to arrive in Holland, the conductor said it was time to request my ride.  The Lyft app said the driver was 20 minutes away.  😦  Deep breath Grace you got this.

When the train arrived in the station, I hesitated to move until I saw the conductors setting up the LIFT.  Drunk guy was no where in sight, and I could see the lift driver standing by his car.  I told the conductor I felt confident that I would be fine, apologized for being any trouble, and thanked him for his help.

As the Lyft driver was loading my wheelchair into his trunk, I could see drunk guy approaching quickly.  I said, ” I don’t know him, he is NOT with me, can we go?!?!  Before he could get in the car, drunk guy said, “You be sure you take care of my friend”.  Harmless enough, but please Let’s go!!!!!!

I confirmed the hotel address with the driver, and quickly called Thing One to tell her I was ok and to ask her to text my dad.  When I hung up, the driver asked, “rough night?”  I replied, “Yeah, you could say that, and I have to be on the train again at 6:30 in the morning.” 😦  He asked, “Are you using Lyft to get to the station tomorrow?”  I responded, “Yes, it’s the only thing I could find as far as transportation.”  He advised me to start requesting a ride at least an hour before I had to be there.  Most Lyft drivers were from Grand Rapids (1/2 hour away) like himself, and I might have trouble finding a ride that early….. Oh yay.

When I arrived at the hotel, I put my bag on the wheelchair and headed for the smoker’s bench.  The desk clerk, Brent, was outside vaping.  I told him I was “the late check in”, but needed to “chill” for a few before going in.  I reached into my bag for my phone, but it wasn’t there.  Oh No! You have got to be kidding me!!!!!!  Brent let me use his phone to call mine and even walked with me around the area I was dropped off at in the parking lot.  No luck…. SON OF A …….!!!!!!!

I hoped I remembered to print all of my ticket information, but if I didn’t it was all on my phone.  I was sure I left it in the Lyft driver’s car, but how would I reach him? I spent the next 2.5 hours trying to retrieve it….smh  Did I mention it was 12 o’clock in the morning?!

Before I tell that story, I would like to ask for your opinion.  I asked earlier “Have you ever found yourself in a position that you wanted to leave, but physically could not get out of?”  Were you able to keep your composure?  How do you protect yourself if you have a physical disability?

The drunk guy was probably just that.  He was probably a nice guy even.  I think I had stronger emotions because I was out of my element so to speak.  Or maybe I under reacted?   If you would please take a minute to share your opinion/experiences with me.