A very LONG walk

I don’t know if I have ever talked about it before, but I used to be STUCK in a wheelchair.  It was 2009, before I started Tysabri Infusions.   I won’t give all the credit the that I am again walking to Tysabri, but it has been very effective at slowing down the frequency of my MS flares and relapses.  There was also a stay in a rehab facility and a solid year of physical therapy 3 x a week once I was discharged.  I have also been on Ampyra for, hmm I don’t know how many years as well.  (If you have never heard of it, Ampyra is known as the “walking drug” for MS.)

A few years ago, I had worked up to being able to walk for a full mile at a time without having to stop or take a break.  That’s NOT to say I wasn’t ‘down’ for the rest of the day, or that there were not a few falls ( and bone breaks ) involved, but I went from wheelchair to walking, and I was so proud of myself!!!!  I had even begun taking my dogs for my morning walk, until that ONE DAY!

When I woke up that morning, I didn’t really feel like walking, but if therapy taught me anything it was IF YOU DON’T USE IT, you LOSE it.  So I dragged my ass out of bed, brushed my teeth, coffeed, leashed the dogs, and headed out the door.

dogsWhen my dogs went through obedience and therapy dog training, they were each ‘assigned’ different sides, D. O. G walks on the left, and SNUFF walks on the Right.   (in the picture  they are reversed) I wrapped each of their leashes around my hands tightly, and would soon find out that I had made a HORRIFIC mistake in doing so.

Both dogs could sense that I wasn’t feeling well and weren’t behaving as well as they normally did.  (They were competing for my attention and walking under my feet.)  I was very grateful to be rounding the last corner of the block  (I was less than 200 feet from my front door)

The “Scene of the Crime”

sceneThis building was a barber shop, and the barber had come out to empty his trash.  When he saw me he waved and called “hello” as he did 100 times before.  For some reason, both dogs pulled in different directions and down I went…… literally something like this….


I landed directly on my chin and was pulled/dragged toward the un-offending man while he ran back in the store.  (In his defense, he did TRY to come back out to help me up, but the dog’s seemed to have lost their minds when I fell and would not let him anywhere near me)

Somehow I got the dog’s under control and was finally able to stand up and limp home.  I made it in my front door, called out to thing 2 and immediately collapsed again.

(to be continued)

I don’t think I made it clear when I posted this, this was a couple years ago.  Sorry if I mislead anyone





Don’t try this at home!

I have been sitting here for an hour trying to start writing about MS.  I don’t have writer’s block, I have too many topics that I can’t focus on just one.  I’ve reviewed my pre-written list of Ramblings, and instead of selecting one, I’ve added 20 more.  While this is good for the future, it’s not what I want to do right now, so I have sat and stared at the screen literally for an hour.  Thankfully? I have places I have to be today and can’t continue to sit here for another hour.

The first place I have to go this morning is to the Eye doctor, SILLY DOCTOR gave me BIFOCALS last time, which in hindsight is utterly ridiculous for a person with MS. (I watch the ground when I walk, because I can’t feel my feet).  It’s not justified, but I am a bit upset with said doctor for not thinking of that considering they watched me walk in and out of their office several times.  Why didn’t they warn me?

I did admit that my upset is unjustified (doesn’t change the fact that it is there though).  It was MY mistake.  While I did notice my issues when leaving the doctor that first day, I thought I could manage and learn to deal with it.

Yeah Grace add another thing to your list of “deal with it”?!?!?

 I think I mentioned before that I make a lot of mistakes, and I believe that is ok as long as you learn from them.  In my case, it took me not one, not two, but 3 WIPEOUTS before I came to the conclusion that I REALLY, REALLY need new glasses.

Did I mention a person with walking and balance issues should NOT wear bifocals?!?!?




Well as they say, 3rd time is a charm?  Please learn from my experience and DON’T TRY THIS AT HOME!!

I do hope to post about MS later today…wish me luck?