Healthy resources for chronic illnesses

Last week I shared, my list of Not your Typical Blogger Awards recommendations.  I mentioned in the post that I also had recommendations for chronic illness bloggers that were inspirational and motivating that I would share if requested.

As I continued to reread posts from February of last year, I realized that I had completely forgotten that not only did I actually write a little about MS in February, but I also made a video about being newly diagnosed> I was also fortunate enough to have some of those very same inspirational and motivational bloggers do guest posts on my blog.  Their names and links to their blogs can be found here.

I would like to add a few of the chronic illness bloggers that I have also begun following since that post was written that I also find very motivating and helpful.

First is Terri, from Reclaiming Hope.   Terri lives with Fibromyalgia, and offers great tips on total wellness, sharing advice on complete wellness encompassing emotional, social, spiritual, occupational, intellectual, financial, and physical aspects.  Whether or not, you suffer from a chronic illiness, I think you may find a lot to gain by visiting her site.

Next up is Heather and Dizzy from Dinosaurs, Donkeys, and MS.  Heather was diagnosed with MS a only a couple of years ago, but you would think she had been living with MS for a long time, based on the amount of information she shares.  Heather shares information about the OMS program, many exercising techniques, and relaxation techniques through her stories with her Donkey Dizzy.  She has also begun a podcast featuring two herself and two other MS bloggers from the UK.  If you have a minute, potter over  to her page, again you will not be disappointed!

Also from the UK is Caz, the author of Invisibly Me.  For a quick glimpse at her personality, check out her post, This and That.  As with most invisible illnesses, you wouldn’t know that anything is “wrong” with Caz, by looking at her, but she takes this one step further by sharing tips on how she continues to fight and rise above the trials she faces.  I especially like her post, What my invisible illness(es) have taught me. If you have another moment, (while you are in the UK :P) take a few steps over to her page.  About once a month she will share frugal finds for things she has found that help beat the heat and work on relaxation.

While I’m taking you around the world (well yah the internet is) I’d like to take a moment to visit Vancouver and talk about Amanda from Walk a Myelin* My shoes Not only does Amanda talk about the realities of living with Chronic Illness on her blog, but she is in the process of writing a book, and often talks about the other side ( caregivers and support people for those of us living with an invisible or chronic illness). To keep in line with the subject I wrote about earlier with being newly diagnosed, I would like to share this post written by Amanda as a place to start.

It is so easy to fall in with “the bad crowd” of people living with chronic illness.  By “bad crowd”, I don’t mean bad people, I mean people that spend more time succumbing to  their diagnosis and limitations than they do focusing on the positives in their life or are resigned to let the disease consume them.  (I think we may all go there from time to time.) Personally, I find it so much more helpful to spend time with people that while maybe struggling, continue to fight each day.

I hope you can take some time to visit the above mentioned websites, and that you find them as helpful as I do!

I have showed you mine, will you show me yours?

Do you have any websites or bloggers that you follow that share tips for dealing with chronic illness?  I would love to hear your thoughts

Maybe you can share some recommendations that you have?

 

A Trailer “fell in my lap”

Ok not literally, but YAH I have a “Free trailer”

I have mentioned before that I grew up “in the sticks”, and I have also alluded to the fact that I was kind of raised as a tom boy.  I know how to drive a tractor, trailer, dirt bikes, 3 wheelers, and even a skid loader.  My father owns many of these items, but in his “old age” I think he has “forgotten” how to use them.  I am being very sarcastic here, because he still uses them all the time, except for in the winter.  For some silly reason, he no longer takes his truck off road, he barely takes it out in the winter for fear of rust….SMH (more sarcasm) AND when he bought his newest truck, he bought one with only a 6 foot bed.  real truck

(The guy who raised me telling me that if you couldn’t fit a full sheet of drywall or plywood in the back of a truck it wasn’t a REAL Truck, bought a truck with a 6 foot bed!!!!!!!!) SMH  He even owns two plows, but doesn’t drive his “new baby” in the winter?!?!??!?!

Figuring I still had a few more weeks of winter before I had access to a truck and trailer, and the ‘silly doctor’s’ “don’t lift 15 lbs for 2 weeks limit” I’d been packing a little here and a little there to try to respect the doctor’s restriction, so I had stacks and stacks of rubbermaid totes all over Einstein’s house. ( a few in this room and a few in that room)  but then a trailer “fell in my lap”….how could I resist?!?!?

Thing two and her boyfriend “D” were using D’s truck with my father’s trailer to move a couple motorcycles and I “conned” D into giving me a couple hours of his time in exchange for homemade lasagna.  The ‘Catch’ was, I only had the trailer and D’s help for a couple hours…. hurry hurry hurry.

OK PRIORITIZE, what goes first?

  • Air mattress already set up at the new place…so don’t worry about the bed
  • You’ve got some clothes and essentials there so don’t bother with more ( besides they will fit in your car)
  • The most important non negotiable material things that I need a trailer for are my Grandma’s kitchen table and my desk  (both had to be disassembled though)  So I decided to start there.  I went into the office…and froze… OMG this is real.

Anxiety Can Paralyze You

I immediately started having doubts.  “Were things really that bad here?”  “So much work, for so many years….shouldn’t I try harder?” It didn’t help that Einstein has been the man I fell in love with for the last couple weeks since I said I was moving, he even tried to take care of me post surgery and cooked me dinner?!??! (ftr this has NEVER happened) He helped me with a 3 d printer design and and and….. oh no….NOT AGAIN….. You’ve got this Grace.  So I froze. and then I stopped breathing….wtf?!?!?  I was just about to walk out of the office making excuses that I should follow doctors orders blah blah blah and then not one but two familiar faces popped up on messenger….”Just checking on you grace.”  Suddenly I could breathe again. (This anxiety shit really is no joke.)

The Therapeutic Power of Music

I selected random play for the music on my phone and Kesha “Praying” came on.  (  I am in no way religious, although maybe it would be helpful if I was, I am not.  It doesn’t change the fact that the song is incredible and something I will continue to listen to)  If you have a second, the link is for her official video, and for me it hits home.  The next song was “New Rules” by Dua Lipa, followed by “Not meant to be” by Theory of a Deadman.  Before I knew it the desk was not only disassembled, but I had dragged it out of the “office” to the front door.  I set up a card table where the desk used to be and reconnected my computer.  The legs were removed from my Grandma’s table ( I couldn’t dream of moving that by myself though, WAY TOO HEAVY)  But I did it!

One Step at a Time

 

 

Plan for the worst, hope for the best

Last week, as I was planning for the rough road ahead, I wrote and scheduled several blog posts in between packing.  ( I really do have a lot of shit…smh)

I  believe in planning for the worst while hoping or planning for the best.  ( I assumed I will be too emotional and busy packing to focus on keeping up with my blog and maybe too drugged from surgery)  So, tomorrow I have a video post coming out about Advice for those newly diagnosed with ms and a video about how I was diagnosed with MS (previously recorded of course).  I have asked a few fellow bloggers to add their advice and stories as well in the form of guest posts during the following week.

The bloggers I have included have been more than inspirational to me during this “rough time” WHILE still dealing with their own MS issues.  Please come back and check out their posts, and if you have time their blogs as well.  If you know anyone that has MS or another chronic illness, these guys are GREAT sounding boards and examples of how to make it day to day with MS.

Let me repeat, I AM NOT LEAVING THE BLOGGING world, I just don’t want to set myself up for failure or lose any progress I have made scheduling posts etc.  I have met so many wonderful people here in the blogging world (one positive addiction) that I know I will  be checking and responding to comments.

AND…. On the positive side, Thing 1 is getting married on March 10th, family is coming in from out of town, my Boston Trip is coming up…busy busy busy 🙂

Please check out my post and videos that are coming out tomorrow, and if we aren’t able to “Catch up” ENJOY YOUR WEEKEND!!!!!